Friday, September 13, 2013

A week in the life.




This week was an okay week. Although things are pretty topsy-turvy in our family right now (deployment, moving, etc.), I'm handling it pretty well. We took the dogs to the dog park & lake again, which they LOVE. I shared my homemade ribbon holder for a photo-a-day challenge. I really need to get back into my craft room. I miss it. But I'm just so tired. All. Of. The. Time. I took an amazing pic of a dragonfly at the park. I just love them. Beautiful little creatures. Until one lands on me..... then it's on like Donkey Kong. 

We went to a hot air balloon fest & took a quick got lost in the corn maze while waiting on the glow to start. I woke up to a broken air conditioner one morning. Not really the way you want to start your day. But then you remember you have a home warranty & the anxiety ceases. It basically cost us $5 to have a part replaced/repaired. I had a massage that same day by my go-to-gal, whom I absolutely adore. We've budgeted for me to have them every other week because they help tremendously. I wish I could just use them for relaxation, but for me it's essentially a therapy. Too bad insurance doesn't agree, right? 

Fall kind of arrived this week after our last heat wave (100's are supposed to be back in LA, not here). It's now nice & cool in the mornings & in the evenings. We enjoyed some time on our back deck this evening (after fretting over knot holes that we either have to repair or replace entire pieces of wood). It's always something, right? ALWAYS. Home ownership is never relaxing. I started a Precept Upon Precept study this week & am very much looking forward to it. 

I had  really bad day today. It started with a Cortisol test, for which I had to take a dose of steroids last night. Thankfully I slept well & the phlebotomist did a good job. I came home & took a nap that ended up lasting four hours, had an ocular migraine for the first time in months, and all around just felt like crap. I'm getting really tired of it. Let me rephrase - I'm TIRED OF IT. I hate this disease (Scleroderma/Morphea) & I hate what it's doing to me right now. I went to the Dermatologist this week for the first time since my positive biopsies in late April on the new spot on my neck. We're starting an aggressive treatment due to its location. I do not want it spreading to my head or face. I've heard if it gets into your hair line that it can cause no hair to grow there. Wouldn't that be lovely? Just great. So I'm using two steroid creams & a new steroid tape at night (Cordran tape) over one of the creams. We'll see. He also gave me a prescription for a handheld light machine since his office is a good 30 minutes away. When I last did light therapy, I went three times a week. The insurance won't approve it more than likely, but since we're rocking the Dave Ramsey Financial Peace, we can afford it! 



Sunday was Grandparent's Day. I don't have any living grandparents anymore & I miss them dearly. On the top left is my paternal grandparents - granny & granddaddy. On the bottom right is my maternal grandmother & her 2nd husband who I always considered my grandfather, but simply was called 'James'. I never met my biological maternal grandfather. He died when my mom was a young adult. My husband & I, as well as our friends, had a great evening out at the hot air balloon fest.

Looking forward to what this week has in store for me! Hopefully some good days....


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